A Physiotherapist in the Paediatric Haemophilia Clinic at University Hospital Southampton: - Patient and Family Satisfaction

Purpose

Previous to September 2016 paediatric haemophilia patients at Southampton Children's Hospital were seen within the general outpatient caseload of a band 7 Paediatric Physiotherapist.

As a result:

  • The children did not have timely accessibility to physiotherapy
  • There was a high rate of was not brought (WNB) as physiotherapy appointments were extra to clinic appointments therefore requiring a separate visit.
  • The children were not seen from their diagnosis, therefore often did not meet the therapist until age 4 when a Haemophilia Joint Health Score could be performed.

In September 2016 a physiotherapist started to attend the Paediatric Haemophilia Clinic. 

The purpose of this review is to evaluate patient/ family satisfaction with the introduction of a physiotherapist into the monthly clinic. Each Family were also asked 'what it means to each family having a physiotherapist in clinic?'

100% of families found having a physiotherapist
in the haemophilia clinic was useful. 83% of which stated very useful or invaluable.

100% of families felt that they had benefitted
from having an assessment in clinic and being given a home exercise programme.

100% of patients stated the importance of seeing a physiotherapist as a score of 5 and 6.
Patients were asked, on a scale of 0-6...

100% of patients stated the importance of seeing a physiotherapist alongside the MDT as a score of 5 and 6
Patients were asked, on a scale of 0-6...

Approach

Families with a child with severe or moderate haemophilia were given a questionnaires at their clinic review.

The total being 4 Moderates and 13 Severe ( 12 Haem A and 1 Haem B) 17 questionnaire in total. 

Outcomes

100% of families found having a physiotherapist in the haemophilia clinic was useful. 83% of which stated very useful or invaluable.

100% of families felt that they had benefitted from having an assessment in clinic and being given a home exercise programme.

Patients were asked, on a scale of 0-6, how important do you feel it is that your child sees a physiotherapist?

How important is it that the physiotherapist is part of the MDT in clinic?

100% of patients stated the importance of seeing a physiotherapist as a score of 5 and 6.

100% of patients stated the importance of seeing a physiotherapist alongside the MDT as a score of 5 and 6

 

Families also commented on the importance of having access to physiotherapy in clinic including answers such as:

  • Fewer appointments
  • Build a rapport with the therapist
  • Less time off school
  • MDT

 

A physiotherapist in clinic has:-

  • Been of great value to the patients and their families,
  • Families are satisfied with the service provision.
  • They have found that having the assessment alongside the MDT is very useful.
  • Families have found the information that they are given very useful.
  • Families rate the physiotherapist as part of the multi-disciplinary team very highly.

 

A Physiotherapist present in clinic we can improve:-

  • Patient and family satisfaction.
  • WNB rate.
  • Increase contact and awareness of the physiotherapy role in clinic.
  • Decrease the amount of appointments attended.
  • Compliance with Comprehensive Care Centre standards

Implications

Audit against paediatric Haemophilia standards.

Fund acknowledgements

None. 

Additional notes

This work was presented at Physiotherapy UK 2019.