A Physiotherapist in the Paediatric Haemophilia Clinic at University Hospital Southampton: - Patient and Family Satisfaction
Previous to September 2016 paediatric haemophilia patients at Southampton Children's Hospital were seen within the general outpatient caseload of a band 7 Paediatric Physiotherapist.
As a result:
- The children did not have timely accessibility to physiotherapy
- There was a high rate of was not brought (WNB) as physiotherapy appointments were extra to clinic appointments therefore requiring a separate visit.
- The children were not seen from their diagnosis, therefore often did not meet the therapist until age 4 when a Haemophilia Joint Health Score could be performed.
In September 2016 a physiotherapist started to attend the Paediatric Haemophilia Clinic.
The purpose of this review is to evaluate patient/ family satisfaction with the introduction of a physiotherapist into the monthly clinic. Each Family were also asked 'what it means to each family having a physiotherapist in clinic?'
Families with a child with severe or moderate haemophilia were given a questionnaires at their clinic review.
The total being 4 Moderates and 13 Severe ( 12 Haem A and 1 Haem B) 17 questionnaire in total.
100% of families found having a physiotherapist in the haemophilia clinic was useful. 83% of which stated very useful or invaluable.
100% of families felt that they had benefitted from having an assessment in clinic and being given a home exercise programme.
Patients were asked, on a scale of 0-6, how important do you feel it is that your child sees a physiotherapist?
How important is it that the physiotherapist is part of the MDT in clinic?
100% of patients stated the importance of seeing a physiotherapist as a score of 5 and 6.
100% of patients stated the importance of seeing a physiotherapist alongside the MDT as a score of 5 and 6
Families also commented on the importance of having access to physiotherapy in clinic including answers such as:
- Fewer appointments
- Build a rapport with the therapist
- Less time off school
A physiotherapist in clinic has:-
- Been of great value to the patients and their families,
- Families are satisfied with the service provision.
- They have found that having the assessment alongside the MDT is very useful.
- Families have found the information that they are given very useful.
- Families rate the physiotherapist as part of the multi-disciplinary team very highly.
A Physiotherapist present in clinic we can improve:-
- Patient and family satisfaction.
- WNB rate.
- Increase contact and awareness of the physiotherapy role in clinic.
- Decrease the amount of appointments attended.
- Compliance with Comprehensive Care Centre standards
Audit against paediatric Haemophilia standards.
This work was presented at Physiotherapy UK 2019.